Tuesday, December 16, 2008
Remembering Our Caden
Last week, I was talking with our good friend and sonogram angel Jan, who told us that Caden's story is being shared at the Liberty Women's Clinic...young women who are conflicted about their pregnancies are learning about our son...he is serving as an example of how precious life is...whether lived inside or outside the womb.
We have also received a couple of very special ornaments for Caden. A teddy bear from Paula, and an angel with Caden's name on it from Grandpa and Grandma Carlson, who buy our children ornaments every year. Another colleague of mine asked if we had an ornament for Caden and said that if we didn't, she wanted to buy us one.
A beautiful evergreen wreath arrived on our doorstep last week from our friends the Hoffmanns. Our friends' words on the card that came with it said "May this Christmas bring you a peace that passes all understanding". The tears rolled down my face as I hung the wreath on our front door. With its big red bow and fragrant needles, it is a symbol of the beauty of Christmas.
Today the Alexandra's House newsletter came to us in the mail. In it are stories of several babies who left this earth too soon, and in the midst of the newsletter was Caden's story. Seeing his perfect and beautiful face in print was overwhelming. We are blessed to share his story with others.
As we seek for the peace that passes all understanding, we know that our peace comes, in no small part, through the prayers of others. Please know that each and every gesture you make to remember our youngest son touches us in the deepest part of our hearts. The greatest gift of all is knowing that his life, however brief, had a purpose...and that he touched people with his strength, innocence, and heavenly presence.
Sunday, November 30, 2008
5 Months
I suppose it might be a bit cliche' to say that we can't believe how quickly the time has gone. But I'm going to say it anyway. It has been five months since I felt our baby move inside me. Five months since I held him, smelled him, kissed him, and looked at him, trying to memorize every tiny detail of his face and body. Five months since I saw all three of our children together.
8 months has passed since we were diagnosed and told our baby would not live. And now, we prepare to face our first holiday season without our fifth member.
Thanksgiving went well. We travelled to Lindsborg and spent time with Brandon's family. It was a short trip, but a good one. The day after Thanksgiving, however, was really hard. The kids and I decorated the house for Christmas, which is always a sentimental time for me. Many of the decorations we put out belonged to either my Mom or my Grandma, who both LOVED Christmas. So, I think of them as I put things out...happy for the memories, but saddened because they are not here with us. The hardest part of decorating for me, though, was realizing that last January, as I put the decorations away, I did so thinking "Next year, we'll have a new baby in the house when I put these out!". Realizing that this wasn't so was not unlike being punched in the gut. I was supposed to have a little one with me. The Christmas music was supposed to be interrupted by a little one cooing or fussing. I was going to get to shop for three kids this year. Oh....
As usual, it was Connor and Kylee to the rescue. They were SO excited to put the decorations all over the house, and watching them sift through boxes while wearing their pjs...all of us warm and cozy together...made it possible for me to find joy in the midst of a painful day. We made a special Christmas ornament for Caden and hung it on the tree. They were both so excited to incorporate our baby into the preparations.
We have been told that many families who have dealt with infant loss find something symbolic that reminds them of their little one..common ones being angels, butterflies, or rainbows. We have found that our symbol for Caden is a teddy bear. I have always loved teddy bears, and it seems that they remind us of our special boy more often than anything else. I think that Santa will be bringing Connor and Kylee a little teddy bear in memory of Caden this year. It is nice to have some way to bring him into our Christmas tradition...because he is, of course, always in our hearts.
Sunday, November 23, 2008
10 Thoughts
I came across this list on another blog this last week, and wanted to share it with all of you. I find it very poignant.
When speaking with my students about our experience, many of them have asked me..."What do I do or say when caring for someone who is dealing with loss?" I think this hits the nail on the head.
The timing of this is interesting to me...as we approach the holidays, I think it is important to remember that they are not necessarily all joyful for many families. While it is a wonderful time of year, it is also a time that reminds us in a very real way that those that we have said goodbye to will not be with us around the Thanksgiving table or opening presents with us on Christmas morning. Be it death, divorce, illness, job loss, financial hardship...whatever...the holidays can be a lonely and painful time. I pray for those families who are hurting this year and invite you to pray along with me.
At any rate, here is the list. I hope it will be especially helpful to those of you who are comforting someone who is hurting this holiday season and in the months and years to come. Maybe, if you are the one who is hurting, it will help to put words to some of your emotions.
Thank you, once again, to all those who have comforted us in so many, many ways:
1. BE THERE FOR ME. If you are my friend, reach out, talk to me, hold my hand, hug me. Know that even though we may say we are all right, we will never be all right again.
2. WE ARE DIFFERENT. Understand that what has happened will change us forever and if you are my friend, you will accept me for what I have become, for who I am now, a person with different goals and different priorities. What was once important to me may no longer have any meaning.
3. BE A GOOD LISTENER. We want above all else to talk about our loved one. To us, they will always be alive in our hearts, and we don't want others to forget them either. Don't be afraid to mention their names in our conversations. They were real people at one time, even though they are no longer with us. They had hopes and dreams we'd still like to share with others. Please don't pretend they never existed.
4. NO ONE ELSE KNOWS HOW I FEEL. We all grieve differently. Please don't tell me you know how I feel. You don't. Rather than asking me, "How are you feeling?" ask me "What are you feeling?" I can probably give you a more honest answer.
5. I MAY GRIEVE FOR A VERY LONG TIME. There is no set time limit to my grief. It may take me two years; it may take me five years. I have to do what is comfortable for me. Be patient. I will do the best I can in whatever amount of time it takes.
6. KEEP IN TOUCH. Call me once in a while. I promise to do the same. Invite me to lunch or to a movie. I will eventually go, because I will eventually feel better. Don't give up on me and don't forget me. I am trying to do the best I can right now.
7. I MAY CRY AT TIMES IN FRONT OF YOU. Please don't be embarrassed, and I won't be either. Besides being a natural emotion, crying is also a cleansing emotion. By crying I can relieve a lot of anger, frustration, guilt and stress. And best of all, I feel much better after a good cry.
8. I PUT A MASK ON FOR THE PUBLIC. Don't assume just because I am functioning during the day that I am "over it." I will never get "over it." I try to function normally because I have no other choice. You should see me when the day is over, and I am in the privacy of my own home and free to let my emotions out. My day mask comes off and I am just a mother, aching for her child.
9. SOME DAYS MAY BE OVERWHELMING. The slightest thing can trigger a bad time. It can be a song, a place I go, a holiday, a wedding or even smells or sounds. If I break down and start crying or seem to be in another world, it is because I am thinking of my loved one and longing for what I will never have again. I may need to try different things before I find what will be right for me in my new life. Encourage me to reach for the stars.
10. LET ME DO WHATEVER MAKES ME HAPPY. We will never forget our loved one. The pain never leaves. It just softens a little with time. We eventually function again, feel hope again, find joy in our lives. It is a long road that we travel, but with the help of friends and relatives who understand a little of how we feel and what we are going through, perhaps that road will lead to new paths to enrich our lives in new ways we never dreamed were possible.
Tuesday, November 18, 2008
Trick or Treat, Smell our Feet...:)
Kylee actually just painted hers, and then enjoyed making her own design with the carving tool (which resembled more of just a hole in the pumpkin rather than an actual jack-o-lantern face). However, over time, we have learned the hard way that it is certainly NOT in our best interest to advise our daughter on her artistic creations (particularly when she is holding a carving tool).
Connor and I were grocery shopping on Halloween. A man came on the loudspeaker and announced "Happy Halloween! Today all our pumpkins are FREE!". The pumpkins were in a big pile outside the front door. We already had our pumpkins for the kids. But...the word free invokes some kind of strange adrenaline rush in me. I looked at Connor, said "We've got to hurry!", and made a mad dash for the front of the store (I was somewhat impaired in my mad dash by my cart that was heaped with groceries). We abandoned the cart in the entryway of the store and ran outside. Connor picked his pumpkin (with me standing there chanting "Hurry, Hurry!"...I was afraid an innocent stocker was going to try to put our abandoned groceries away), and I picked out one for Kylee. Just what our cart needed...two huge pumpkins. But they were FREE! We paid for our groceries and went out to the car. I decided in that moment that I wanted to pick up one more pumpkin...for Caden. I debated, and then went and grabbed one more (after all, they were FREE!)...telling myself that really, decorations look better in odd numbers rather than even numbers. Later, I realized that it was okay to pick out a pumpkin for Caden...for no other reason than I just wanted to.
Now, our free pumpkins grace our porch. All three of them.
Sunday, November 16, 2008
Reflections
In anticipation of the holidays, I have been thinking a lot about Caden...and am wondering how this season will be for our family. Last year at this time, we were just finding out that we were expecting another little one, and spent the holiday season in anticipation of having three kids to celebrate the holidays with in 2008. Little did we know, we were beginning a different kind of journey with our third child.
I have been struggling a bit lately with handing situations over to God...and realizing that just because you go through something really trying and difficult in life, it doesn't mean that you are exempt from pain from that point forward (the last two years of our lives have made that much evident). We are both waiting to find some sense of tangible purpose in Caden's death...and some days are easier than others.
One morning a couple weeks ago, I was driving home from dropping Kylee off at preschool. I was listening to the local Christian radio station, and a Pastor was giving a mini-sermon on the air. Usually, I change the station (I do not share my husband's passion for talk radio) when this happens, but on this particular morning, I listened. The sermon was about having gratitude in any situation. That had my name all over it. I needed to listen.
The Pastor concluded his lesson by telling the story of God's promise to Abraham...that he would be blessed with more descendants than he could count. Of course, you may know that what makes this story most interesting is the fact that Sarah, Abraham's wife, was well past child-bearing age when God revealed this plan. The Pastor went on to say that God fulfilled His promise to Abraham, through the birth of a son and then many other descendants, but Abraham didn't live long enough to see the entire promise fulfilled (descendants that numbered more than the stars in the sky).
God always fulfills the promise.
But He may not choose to do that in my lifetime.
If He doesn't show me, His will is still perfect.
Hmmmm.....
This day gets even more interesting, because I heard the story of Abraham and Sarah two more times on THIS SAME DAY through different venues.
Wow.
I miss our baby terribly. Will we hang a fifth stocking on our fireplace this year in memory of a boy that is not with us? Buy a special ornament for Caden? Cry on Christmas morning because he isn't here with us? I don't know.
But, this I do know...God will be there to hold us as we feel our pain or sadness. I suppose that's all that matters. Hopefully there will be joy for us as we celebrate the birth of the Christ child. I hope that this holiday and birth celebration will begin a new phase of life and rememberance for us. In a season of hope, I will be making a conscious effort to acknowledge that God is with us, fulfilling his promises to us....and whether our Caden is with us or not, he is the fulfillment of a very special promise to us, as every child is.
For that, I am thankful.
Thursday, October 30, 2008
Four Months
Tuesday, October 28, 2008
A Different Kind of Healing...
Thursday, October 2, 2008
Grandpa
Just wanted to take a few minutes this evening to give you an update on my Grandpa. As you may recall, I had posted about him back in January when he suffered two strokes. It has been a very long 8 months for our family as we have sought the best possible treatment for him, both in Kansas City and in Great Bend.
My Uncle Craig made the decision about a week ago to move Grandpa to a Hospice Center in Salina, KS (www.hospiceofsalina.org). The place is beautiful and the care that Grandpa has received there has been nothing short of incredible. Craig moved Grandpa there with the intention of stopping his tube feedings, believing that continuing them was a violation of Grandpa's living will (he was receiving the feedings 16 hours a day as a sole source of nourishment due to being unable to swallow following the stroke). This was a decision that could be considered highly controversial by some, but Grandpa had always been very clear about NOT wanting to live the kind of life he was living following the stroke. We had hoped that therapy might help him rehabilitate, but results from therapy weren't what we had prayed for. Given all this, Craig approached us about discontinuing Grandpa's tube feedings at the end of October.
I was torn about discontinuing the feedings...knowing that Grandpa wouldn't have wanted them, yet at the same time, not wanting to play God. God heard our prayers...and while the answer was not easy to take, it is an answer we are grateful for. Over the weekend, while still receiving his tube feedings, Grandpa started having some difficulties breathing. On Monday, Grandpa slowly slipped into an unconscious state and has become less and less responsive. We got a call yesterday, and Sarah, Jordan, and I were told to come right away...Grandpa was fighting to breathe and his nurses didn't believe he had much time left. We drove to Salina last evening and spent the night at Grandpa's bedside. We spent the morning there and left in the early afternoon after taking some precious moments to tell our amazing Grandpa "goodbye". It hurts to see him go, but we know he is ready to shed his current body and be restored in heaven.
Grandpa is being medicated and kept comfortable. It looks like he wanted to do things on his own terms. Pretty typical of this strong man. Doctors predict that today was his last day on earth, but as a former oncology nurse, I know how hard it is to guess how much time someone has left on this planet. We shall see. I am back home, checking in frequently via phone.
As I laid beside Grandpa in bed today, I realized that by being with him in that moment, I was incredibly close to heaven...specifically close to my Mom, and, of course, Caden. Grandpa is going to be seeing them shortly. I asked him to greet my mother and son for me when he arrives at the gates. I have a feeling they are already calling to him, appearing above him, preparing to welcome him Home.
We will keep you posted.
Tuesday, September 30, 2008
Three Months
Three months ago today, we met and told our precious Caden goodbye. I was reflecting a couple days ago about how we knew about Caden's condition for three months before our delivery, and now, that same amount of time has elapsed since he was born. That is crazy to me. It has been six months since all of this began. Wow.
This month has held its own challenges and heartache. The beautiful garden in our backyard was finished. The dedication was held, despite tornado activity and torrential downpour. Our dear friend, Jan Witzke, walked in the first annual Liberty Women's Clinic "Strides for Life" walk in memory of Caden. She carried his picture with her while she walked. We all signed her t-shirt. Yesterday, I had the privilege of speaking with a group of senior nursing majors at William Jewell as part of the OB class' perinatal loss lecture. The Holy Spirit was right there with me. Wanda, a colleague of mine who has also experienced the loss of her son, sat beside me and encouraged me as we both shared together. The students were receptive, interested, and genuinely compassionate. It was exhausting and wonderful.
I am finding that it is easier to talk about Caden. I am also finding that, despite the fact that he is not here with us, my love for him is actually growing with each passing day. Isn't that amazing? I am beginning to let go of the hurt, anger, and uncertainty that came with not knowing how things would end, and now that those questions are answered, I am now able to instead focus, little by little, on what an amazing little boy he was. Doing so makes me love him more and more. Don't get me wrong, I miss him more and more, too...his place in my heart grows deeper and deeper with time.
I often wonder what he's doing up there. Is my Mom holding him? Is he playing with other children? How does he look? Is he watching over us? I know that he is happy and fulfilled. And for today, that is good enough for me.
We love you, precious boy!
Sunday, September 21, 2008
"There's More of Us, Mommy!"
Connor and Kylee looked at me and waited for an answer. I think the saleslady sensed there was more to the story. I wasn't sure what to say. What I wanted to say was "Yes! We have more children. You see, on March 30th, we were told that...." but I didn't think it was the time or place to get into all of that. So I simply shook my head and said "No. Just the two of them."
Connor looked at me, and almost immediately said "Mommy! There's more of us! Not just two! We have Caden! Our little brother!"
I then revised my answer...."Yes, we have one more son, but he's not here with us. We have one in heaven and two here." The saleslady said something like "Oh, that's too bad."
I looked at Connor and said, "You're right, Buddy. There are more of you."
And there always will be.
Wednesday, September 17, 2008
A Rough Patch
I am writing tonight to ask for your prayers. It has been a rough week for me. I think the garden dedication, while providing a great deal of closure for me, also dug up a fair amount of grief and sadness...in that fresh sort of way that it hit me right after Caden was born.
I struggle because, while I do believe with all of my heart and soul that God is with me, I feel as if He is just standing there, watching me. Not intervening. Not even comforting, necessarily. I have a strong sense that He is right beside me...however, I wish He would reach out, hold me, and show me some true joy.
Selfishly, I cannot help but reflect on the incredible and painful sacrifice He asked us to make. We were denied any time with our son after making a decision (to continue the pregnancy despite a terminal diagnosis) that we believed to be within God's will for us. It is a tough pill to swallow. I want a reward. And I, in a very human form and fashion, desire it NOW. After all, God has MY baby up there with Him.
We have been told by many who have also lost children that incredible things will happen in our lives as a result of this experience. Many of them also report having visions of their children in heaven or seeing signs here on Earth that lead them to believe that their child is happy and well. Today, I hunger for this sort of affirmation. Just like any parent, I wonder what my son is doing up there. I want to know that God sees the sacrifice we've made and that He's going to make it right for us.
I am so grateful to know that my son is sitting at the Father's feet. But, has God forgotten about those of us who are grieving here on earth? Caden's mother and father? His brother and sister?
The evil one would have me believe that I am forgotten. However, I know that I am not, but I seek His comfort and reassurance desperately. I want him to show me the rainbow behind the clouds. In a tangible, undeniable way.
I see the parallels to my own parenting. I can just hear God saying to me what I might say to Connor or Kylee..."When you choose a better attitude, I will help you." Folks...right now, I don't know if I have a better attitude in me. My tank is pretty empty.
After six months of extreme unrest, my soul longs for peace and joy that only He can bring. And I am going to have to find that in spite of enduring my worst nightmare...telling one of my children "goodbye" forever.
I know it will come. I pray it happens sooner rather than later. I believe He can bring it to me.
Monday, September 15, 2008
The Dedication
As many of you know, the Kansas City area was hit with severe weather on Friday evening, with tornadoes being sighted around the metro area. When the tornadoes finally blew threw, a torrential downpour started. So, those who ventured out to North Star Church on Friday evening were truly dedicated!!! We debated about cancelling everything, but then decided to make a go of it despite the bad weather (growing up in central Kansas has led us to perhaps not be as afraid of Mother Nature as we should be sometimes). The tornado sirens shut off as we were walking out our front door.
We were amazed at the turnout despite the bad weather. Several were unable to join us because of the storms, but we know those that weren't able to be there in person were with us in spirit.
The Dedication was PERFECT. We did move it to our church because of the inclement weather, so we created a PowerPoint that we showed so people could see the progression of our garden. The names you see on the last couple slides are names of all the families who donated to our garden, either financially or with their time. Wow.
I am so thankful that we proceeded with the dedication despite the bad weather. Brandon and I both really needed the closure it provided. Our pastor spoke, Chris and Tiffany, our worship leaders, sang two beautiful songs, and Brandon spoke for a few moments about what the garden has meant to us. It was short, simple, intimate...just what we'd wanted.
Thank you to all of those that made the special effort to come out and join us. It meant the world to us to have you there. For those of you who were unable to attend, here is a piece of the dedication just for you. You can check it out here.
Hopefully that link will work, but let us know if you have any problems with it!
Saturday, September 6, 2008
Planting Day!!
Here are some pictures:
Caden's "Treasure of Heaven" windchime (thanks, Laurie!):
Wednesday, September 3, 2008
Two Months
Sunday, August 17, 2008
Here It Is!
If you choose to watch this DVD clip, you will get a glimpse of some of our family's most intimate moments. If you've been reading this blog over the last several months, you have already shared some of our family's most intimate times, and I feel it is appropriate to invite you into our sanctuary through this 12 minutes, too. I do not take sharing this lightly. These images were captured about a half hour after Caden was delivered. It was 5:00 in the morning, after a very long day and night of labor.
Please know that posting this is an act of trust and love on our part. We thank you for being interested and for desiring to know our little boy in whatever capacity you can. What makes me most emotional when I watch this is not just seeing our precious son, but also seeing how much love he was surrounded with in his brief time on earth. As you watch his grandparents, aunt, uncle, siblings, and friends gaze at him, I hope you can sense what we have been blessed with as we have grieved our loss.
I hope you will enjoy the music on this clip, too. These are songs created by artists especially for the Now I Lay Me Down to Sleep song bank. They are amazing. The last one, in particular, does a particularly excellent job of putting into words so much of what I have felt in the last 6 months.
It seems strange, and a bit inappropriate, to ask you to enjoy this. Instead, I think I will humbly ask you to approach viewing this reverently....in whatever form that takes for you....saying a prayer, shedding a tear, being thankful for a loved one, holding your baby a little tighter (be they 2 years old or 52) or marveling at the beauty of a newborn....our prayers are with each of you as yours have been with us.
Wednesday, August 13, 2008
Our Kylee J
Friday, August 8, 2008
Another Week...
Monday, August 4, 2008
A Preview for You...
Friday, August 1, 2008
It's Friday!!
It's hard to believe that another week is drawing to a close. It has been a good week....probably the best we've had so far. I think maybe it's because I have such a beautiful garden to look at outside my kitchen window! :)
Things have been busy around here...in a good way. We spent an evening with Sarah, Cara, and Collin earlier in the week, and then Dana and Aleksander drove down from Springfield to spend some time with us, so we had fun cruising around town with them.
We are preparing for a weekend trip today. Brandon's cousin will be getting married tomorrow night in our hometown, Lindsborg, so we decided to make a weekend of it by driving to Great Bend to see my Grandpa, too. We will go visit him in tomorrow morning after spending tonight in Great Bend, and will then head on to Lindsborg from there. The wedding on Saturday will be the first time we've seen most of Brandon's extended family since Caden was born. This wedding will be in the same church that Brandon and I got married in, so that always brings back warm memories for us.
We have been a bit frustrated because we still have not received our pictures from the NILMDTS photographer. We are supposed to get them at some point this weekend, but after being strung along for so long, we won't believe it until we have them in our hands. We have both gotten nervous, wondering if maybe our pictures have gotten lost....so we are anxious to see them soon. We went and spent sometime with another Alexandra's House family last night and got to see their DVD, and it was amazing...making us want to see ours all the more. We will certainly keep you all posted...
We are finding healing in each and every day, which is such a relief. I still have my muffin top :) and we still shed tears, but the searing, raw sort of pain is diminishing. We know this is, in no small part, because so many continue to lift us up in prayer.
Thank you.
Sunday, July 27, 2008
Sweating for a Good Cause
If you were able-bodied, you were invited to join in the fun...Connor worked tirelessly ALL DAY. Really. It was incredible. Here he is with his friend Braden. 15 children of our friends that came to help were over at another friend's house, where two very brave women took care of them for the day so we could get this work done. Bless them.
Two retaining walls done:
We have always had a deep appreciation for our friends, but let me tell you, we have a whole new level of appreciation for everyone that came out yesterday and sweated along with us (Brandon and I joined in the fun around noon). Folks worked tirelessly despite the 95 degree heat. And, they acted as if they were genuinely happy to be there. We also have a new appreciation for landscapers and, just level ground in general. We moved A LOT of dirt to get things to this point. Butch was our faithful tiller operator (props to Ron for being a worthy second string tiller operator) and he did an AMAZING job getting the ground prepared.
Friday, July 25, 2008
Blessings Abound
This week has continued to be very rough for me on an emotional level. I don't know if anyone out there can relate, but I can generally go a few days feeling down in the dumps, and eventually, the MASSIVE MELTDOWN occurs. After several times of me answering "I'm fine" when Brandon asks what's wrong, he asks one more time (because he is an exceptionally patient and loving husband), and the dam breaks.
I admire his bravery in continuing to ask, because quiet frankly, dealing with the dam break is no fun for anyone...and if I were him, I might wish to avoid that. But he persists, knowing that eventually, the emotions will come rushing out, along with a great deal of whining, tears, and verbal diarrhea. Thanks, honey.
This week has actually been a good one for my wonderful husband. He got to go see the new Batman movie with our neighbor (rave reviews, by the way) AND, he is getting a new cell phone (this rivals our wedding day and the births of our children in terms of joy for those of you who don't know of my husbands love for gadgetry, particularly a good cell phone). I love it that my husband finds so much excitment in these things. He deserves it. Truly. But, as a result of this, I started feeling sorry for myself because I am currently craving some "happy things" in my world. So, the downward spiral began.
The dam broke and the meltdown occurred last night. Part of my meltdown resulted in somewhat of a realization (it is always nice when I can pull something constructive out of the verbal diarrhea)....that I am feeling very RESENTFUL right now.
Now, I am resentful about the obvious...continuing a difficult pregnancy and then not getting to hold my baby while he was alive. But I am also resentful about less obvious things...allow me to process with you all...
1.) My children are going to school in about three weeks. I had anticipated this being a wonderful time for me to bond with our new baby...and now, there's no new baby, and not only that, but I am sending my other two babies away (granted, the youngest will only be gone for 3 hours twice a week, but still!). I was not ready for an empty house, but now God going to make me figure out what to do with it. I feel like I have been asked to "figure out" enough. Ugh.
In talking with many people that have dealt with infant loss, we have noticed two means of coping....the first of which is getting a new family pet, and the second of which is a trip to DisneyWorld. This greatly amused us, because prior to hearing this, we had discussed the exact same methods of coping....
2.) We had contemplated getting a new dog....more or less so I will have something to nurture while my kids are away at school (plus, what is there in this world that sweet puppy kisses won't make feel better?). Now, I think that deep in my heart, I know a new dog probably isn't the right solution for us (we have been down to one dog for about 4 months now and it has been really nice, plus the potty training, the expense, the messes, yadda, yadda, yadda)....but, there is a part of me that defies logic and longs for SOMETHING little, furry, cute, and cuddly in the house. And, I know the kids would love it. We went to Petsmart last weekend and Kylee asked if she could have a chinchilla for her birthday. I think a dog would be a great alternative. Anyway, we can't get a dog right now because we will be travelling a lot throughout the next month or so. So, that idea is out for now. Ugh.
3.) We are not going to go to Disney. We have worked very hard over the last year to pay off our "bad" debt. We have been able to make decent progress, and so putting a trip to Disney on the credit card wouldn't be the most financially sound decision we could make. It sucks to have to be responsible at a time like this, but I know that, in the end, we wouldn't feel good about spending that much money on a vacation right now. But still, I resent that. Ugh.
4.) I can't fit into any of my clothes. I feel squishy, and once again, have been left wondering if my abdomen will ever resemble anything other than a muffin top. When a girl is down in the dumps, she does NOT need to stand in her closet contemplating which pair of elastic-waistband pants she is going to wear. This is much easier to deal with when you have a beautiful newborn in the house...and I don't. So I just get resentful. I know if I watch what I eat, I can lose the weight (although I am afraid that the muffin top is here to stay). However, I don't WANT to deny myself ice cream and french fries right now. But again, if I want to lose the weight, I must be disciplined. One might say, "but Lindsey, it has only been four weeks". But trust me, four weeks of alternating between the two pairs of pants that fit is enough for me. Plus, in a way, it is nice to have at least one aspect of this situation that I can do something to remedy. I just wish it involved consuming more grease and chocolate. Ugh.
I feel like, if God is going to put me in this situation, he needs to help me get through it. And sometimes it is hard to see how He is doing that. But then I look around me and realize how MANY wonderful people are praying for us right now. I see my husband sitting beside me in the dark, just listening. I watch my children play in the swimming pool, splashing without a care in the world. I get an e-mail from someone who is contributing to Caden's garden. I speak with another mother who lost her baby just a week ago and realize that, in fact, although it's all hard, each day does get easier. I am already being given the opportunity to comfort another, and God will use this situation for good....somehow. Through all of these people and things, He is helping me.
After my meltdown last night, I came downstairs this morning, puffy-eyed and praying for the strength to make it through one more day. I found a plate of eggs that Brandon had fixed for me, still warm on the counter. I noticed our kitchen smelled good, and I saw two beautiful lilies that my husband had bought for me last night sitting on our kitchen table in a vase. I am currently watching our two children hard at work coloring on our family room floor....
The blessings abound. I confess my resentfulness and am grateful that God has already forgiven me for it. I know that, despite the fact that I have told Him multiple times this week that He is a real jerk, He is still providing for us in ways we are not even aware of. And, I know that, as the tears roll down my face, our baby is Home.
I know that, while the most painful, this is the best blessing of all.
Wednesday, July 23, 2008
Hanging In There...
It has been a good week so far. Mondays have been difficult for me since Caden's birth...since he was born early on a Monday morning, I tend to relieve the moment we realized he was not alive over and over again. But this Monday was different. Time moved relatively quickly and I found I wasn't totally sad. It was a welcome relief.
Then came Tuesday...and I kind of hit the wall. I was having what my husband refers to as an "off day". The tears stung the back of my eyes several times as the day progressed. My heart ached. I REALLY missed our baby. I know there are many that I could call in these sad moments, but sometimes, the words just escape me. And although I know that we are blessed with many friends that would just listen to me cry, there are moments that I need to grieve our baby on my own. But it is no fun.
Today has been better.
This emotional roller coaster is trying. Although I have dealt with grief before, grieving for your own child is an entirely different matter. We are also at that point now...nearing the one month mark....where many folks have gone on about their daily routine (as they should!), and we are left continuing to deal with the emptiness we have inside. It is the natural progression of things, and it is painful, but a necessary step in the process. Your continued comments on the blog warm our hearts...we are grateful that you all are still checking in. :)
One of the things we are able to think about now is a gift from our friends....several of whom have come together to organize a memorial garden for Caden. They will begin the work of preparing a space for the garden in our backyard on Saturday. We have been completely overwhelmed by their desire to help us memorialize our son in this way....and even more overwhelmed that they are willing to come on a HOT Saturday in July to work on it. :) Our friends have worked tirelessly....planning, visioning, shopping, purchasing, organizing....to make this space so special for us. I have no doubt that the finished product will be amazing. Stay tuned...
We still have not received our professional pictures of Caden. We are hopeful that we might have them in the next two weeks. Our photographer assures us that she is working on it.
I read a book last week..."I'll Hold You in Heaven". Jan brought it by for me and it was a spectacular read for someone in our situation. For anyone who has experienced abortion, miscarriage, or early infant loss, I'd highly recommend it. It was good to get back into something that is Scripturally based. I haven't been able to do any sort of Bible study in awhile, so it was a comfort to me to ease into the Word that way.
Speaking of spiritual matters, we went back to church for the first time on Sunday. We were welcomed with love...lots of hugs and "we're glad you're heres" were given to us. We held it together quite well (if I do say so myself) and it was good to be back at North Star. Going back to church was one of those hurdles that we needed to get over, and we did it. It felt a bit surreal to stand there singing a praise song, when inside, there is a part of me that is so sad. I know, however, that God knows exactly how I am feeling, and that brings me comfort. He knows I am trying. We talked about it afterwards, and going was more an act of obedience than anything else for us at this point, but if felt good. And it was such a blessing to be so well-received. We are grateful for our church family.
Thank you for your continued prayers.
Sunday, July 20, 2008
Special Families
I write this post with a heavy heart and am asking each of you who is still kind enough to check in on us to pray for some new friends of ours.
We came to know Greg and Shelly and Royce and Susan through Alexandra's House. It has been a rough summer for all of us. You know our story, and both of these families have their own stories as well, as they chose to carry their babies, both of whom had been diagnosed with Trisomy 18, to term.
Royce and Susan welcomed baby Gabriella into their lives on Saturday, July 5th. She has defied the medical community's odds in many ways....by making it to term, by surviving birth, and by now, surviving for two weeks. Royce and Susan were able to bring their precious pink bundle of joy home after just a couple days in the hospital. However, Gabriella is now having episodes where she stops breathing...resulting from her brain not telling her body to breathe....and these episodes are occurring more and more frequently. As you can imagine, this has been a very difficult time for Gabriella's family (she has a big brother and a big sister, too!), but they are such a testimony to God's strength as they share how much they are enjoying their short time with Gabriella here on earth. As Royce has said, she is "sprouting her angel wings" as heaven prepares a place for her.
Greg and Shelly, who have three older children, gave birth to their fourth child, Noah James, on Friday the 18th. Unfortunately, they are familiar with our pain, as their son was not born alive. They are now back home together, healing, grieving, and feeling empty. Hearing of their feelings instantly takes us back to the sheer rawness of emotion that occurs in the hours and days after telling your baby good-bye. And it breaks our hearts.
We are amazed at how, even though we have not spent much time with these families, we have felt instantly bonded with them as a result of the shared experience of carrying terminally ill babies first in our wombs and subsequently, in our hearts. We ask that you would say a prayer for these two families and thank you, in advance, for doing so.
Thursday, July 17, 2008
Sparkles and Carl
Our friends funded a trip to Build-A-Bear for our kids. Connor and Kylee each picked out a bear that would remind them of Caden. Connor picked "Carl" and Kylee picked "Sparkles". We have been encouraged to take pictures of things that we do to memorialize Caden, so we snapped some photos of this excursion.
This was such a great gift and we have been truly inspired by it. It was so fun to watch the kids enjoy picking something out and then dressing their bears with love...I have to admit that throughout this adventure, I had a lump in my throat....remembering our youngest and wishing that the kids could love on him directly instead of choosing something to hug in his absence.
The opportunity to do something specifically for Connor and Kylee was wonderful. In trying to meet the needs of ourselves and, of course, Caden, I have often found a huge need to make sure Connor and Kylee's emotional needs are met, too....but that can be difficult when my own emotional and physical energy is low. This was a wonderful way to do something just for THEM, as Caden's siblings. Just as it is important to remember big brother or sister when a new baby comes to the house, it is also important to remember siblings in a time of loss. We were grateful for the opportunity to do this with our children.
Thanks, Doug and Polly!
Monday, July 14, 2008
Welcome Home!
We took off this weekend for a spur of the moment trip to St. Louis. My sister Sarah had some hotel points built up and she let us cash them in for a couple nights at a hotel (thanks, sis!), so The Carlson Crew was off and running (nothing gets us moving quite as quickly as something that is FREE!!!). We had a great time visiting the St. Louis Zoo and the City Museum. We got home late last night and will spend today in recovery mode...although Brandon had to go back to work like a real grown-up today, so Connor, Kylee, and I will enjoy recovery mode on his behalf. :)
It was really great to get away for a couple nights. I have to admit, however, that I was a little surprised by how much I missed Caden on our trip! Even though he never got to travel with us outside of my belly, we had gotten kind of used to having him along wherever we went. I missed that this time around. At the zoo, we (of course!), ran into two young mothers who were pushing newborn babies around. Seeing their babies' little feet peeking out of their strollers made my heart ache. Our experience makes me want to stop folks with newborn babies and just let them know how fortunate they are to have those tiny feet in their lives....
When we arrived home, we had some cards waiting for us. We read all of them and continue to be overwhelmed by all the folks who have extended their love and prayers to us. There was one card, though, that stood out to me last night...it says, quite simply..."Long before we're ready, we sadly say goodbye. But there are those, in a far more beautiful place, who are saying "Welcome Home." I thought this was exceptionally beautiful, and it caused me to stop and reflect on what our little Caden is up to right now and who might be saying "Welcome Home" to him....
Caden had two Grandmas waiting for him in heaven. My mother, Beth, and my grandmother, Elinor. I know they were standing there waiting for him when he arrived. Caden also has a Great Aunt, Mary...Brandon's mother's sister, who has received him with open arms. Caden has some smaller friends...other infants who were applauding his heavenly birth....Jael, Gianna, Jayke, Jeffrey, Danny....and he has friends who will be coming up to join him in God's time....Gabriella, Noah.....thinking of all these angels warms my heart. And let's not forget, Caden has a dog, Winnie, licking his face and probably stealing food right off of his heavenly plate. :)
We have received a great deal of comfort from families who have walked through this valley previously, and I am realizing that maybe another benefit of getting to know these amazing people is so that we can have a glimpse of who Caden is spending his time with in Christ's mansion. Doesn't every parent want to know a little about their children's friends? I am getting that privilege, even though my baby isn't here. And it is incredible. So many wonderful people, both big and small, saying "Welcome Home!" to our little man.
I am so grateful to know that Caden is surrounded by such love and hope. Selfishly, I pray that he will find some time to come and peek in on us every now and then...I am so grateful for our little angel...and all of his friends.
Some day, we will get to see our son again. I look forward to the day I get to hug him and hear him say "Welcome Home, Mom!".
Thursday, July 10, 2008
Checking In...
I have had really good moments, and really rough moments...which I know is to be expected. There are moments when I absolutely cannot stop the tears, and then moments when I get a glimpse of the peace that has eluded us since our diagnosis.
Brandon called our neonatologist, Dr. Hall, earlier this week. He was very reassuring to us. He said that he, too, was surprised that Caden wasn't born alive, and he intended to do some research on our situation to see if he could glean some answers about what might have happened. At this point, his best guess was that perhaps Caden got caught up in his cord. He did warn us that there might not be much data out there for him given that most people in our situation choose to end the pregnancy shortly after diagnosis. We shall see. We are fully prepared to not ever have an answer, but Dr. Hall's affirmation that the decisions we made were sound and provided our baby with the best chance possible is valuable to us.
Speaking of Brandon, he has had a good week at work, so thank you all for your prayers. He has felt blessed by everyone's response to him being back in the office. While his motivation level is still a bit low (understandably so), people have been very understanding and accepting, and he has found it helpful to have other things to focus on.
It has been hard for me to ride herd on the kids by myself. I am finding that my hormones are still fluctuating quite a bit, and my energy levels are fairly low by the end of the day (which is probably nothing new, but the exhaustion runs a bit deeper after all this, I guess). I think that the last 3 months, in many ways, is beginning to catch up with me. The kids have been excellent. We try to get out for at least a couple hours each day, which helps all of us quite a bit. I am sleeping very well at night, which makes a huge difference in how I am able to cope with things throughout the day. Physically, I am doing much better, so thank you all for your prayers for that, too.
A couple nights ago, I got the brilliant idea that we should watch our video of Caden's birth. My sister had taped it for us at our request, and I wanted to see what had been captured. Bad idea. We sat and watched it together, and it was as horrific as I remember it being. I have since reflected on that morning and realize that I felt completely forsaken at the moment we realized Caden's spirit had left his body. While I had hoped that the moment that Caden was born would be a peaceful one, instead, I felt that God had abandoned us as I looked at my lifeless son laying on my chest. I struggle with this because I do believe that God does not ever forsake us, but I question His purpose in that moment in particular. What would it have mattered to Him to give us just a few minutes with our son alive? Was He saving Caden from pain? What was the plan? We will never know. It is a tough one to reconcile.
I am hungry for God's presence...and yet, I feel a sense of resentment towards Him as I reflect on Caden's birth. I long to feel God's arms around me. I want to crawl up on His lap and sob. I want to feel joy in the truest sense again....I want to make it through a day without crying, but I also want the memory of my son to stay as fresh as it is today....
I have contacted an infant loss support group leader and we plan to attend a meeting next month. I am hopeful that will be a good resource for us as we continue to work through our grief. We have found great comfort in talking with other parents who have experienced loss, so hopefully attending the support group will be an extension of that.
Speaking of memories of our son, some of you have asked about our Now I Lay Me Down to Sleep (NILMDTS) pictures...we did have them taken, and we are hopeful that we will get them in the next week or two. We will certainly share them as we are able. We are both really looking forward to seeing them, and yet, dreading it all at the same time. I break out sobbing just looking at the NILMDTS website...I can only imagine how I will feel when that precious baby in the picture is ours.
We thank you so much for continuing to support us through prayer and in so many other ways. We are so grateful.